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ABOUT: Autism Disorders http://www.autism.about.com "When you've met one person with autism, you've met ONE person with autism." --Lisa Jo Rudy This is one of my favorite ongoing websites, and you can sign up for listserve updates. Lisa Jo Rudy is a parent of an ASD child and has built a great discussion page with many terrific features to help you stay in touch, stay on top of the latest, and help build awareness of autism around you: --"How little do you need to know about autism?" for family, administrators, coaches of your child --"Top Ten Myths about Autism" --"Top Ten Facts about Autism" --"Autism 101" mini courses. --The latest research, trends, myths, and out-there treatments
Autism Speaks http://www.autismspeaks.org The hot new site of the moment is AutismSpeaks.org, an organization that has entered the big leagues of raising public awareness, lobbying, and raising funds for research. This site has a terrific range of video clips from TV programs and documentaries on autism, covering such topics as early diagnosis, early signs, parenting, teenage and adult issues. A very engaging entry into the topic, and one not without controversy as it claims to unify all autism groups.
Curing Autism http://www.cureautismnow.org
The Statistics.... In my Opinion piece, I cited the statistic of 1:94 boys diagnosed--these were in New Jersey. The CDC looked at only six states: Arizona, Georgia, Maryland, New Jersey, South Carolina, West Virginia, and of them New Jersey may well be the closest match to Ithaca. Studies show autism rates to be higher in academic communities.
http://www.nimh.nih.gov/publicat/autism.cfm
http://www.cdc.gov/ncbddd/autism/actearly/
OASIS http://www.udel.edu/bkirby/asperger/
The book and the website have long been a bible for families of those with Asperger Syndrome. A rich and reassuring resource across a range of topics from diagnosis to daily life to camps and discussion.
Cool learning Sites: Schwab Learning has terrific information on social skills, learning disabilities, publications, and other resources. http://www.SchwabLearning.org
WrightsLaw http://www.wrightslaw.com
Educating a child with ASDs is an overwhelming maze. "From Emotions to Advocacy" is the goal of this group, which guides parents and professionals though the laws ensuring a child's right to an appropriate education in the least restrictive envirnoment. The web site puts legal jargon into understandable English so that you can figure out your child's rights. It is worth visiting this site from the outset to learn to convert your emotional state after diagnosis to positive action. It advises on how to keep your paperwork organized, to maintain a positive relationship with school district officials, to be firm about a child's needs, and to advocate effectively. I attended their seminar when they came to Cortland--it is a well-rehearsed production, but one that effectively lays out a lot of great information in a short, clear session.
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